The Place for helping parents and familes grow! ParenthoodPlace.com

ParenthoodPlace.com Home PageDiscussion Boards our Live on-line CommunityPurchase ParenthoodPlace.com items & support this site!Live Chat Always Open!

"The Place for Helping Parents & Families Grow! "

The following transcript is of a Specialty Chat hosted on ParenthoodPlace.com chat area. They are brought to our visitors as a convenience for those that missed the chat.
 
Please understand the live nature of chats, and their value as entertainment and a forum for the exchange of information. No warranties are expressed or implied of any information exchanged in these areas. The advice given by anyone from members, hosts, staff, and guests on this site should never be used in place of a medical professional. If you, your family member, or a child is in need of medical advice, please do NOT substitute any information on ParenthoodPlace.com for prompt medical attention from your local medical professional.
 
Nancy Cale, VP Unlocking Autism "TITLE: Advocacy, UA Mission
www.unlockingautism.org
Tuesday, November 26th at 7 p.m. (Eastern), Note portions of the text have been edited for spelling and grammatical errors, while other text with errors was left in tact in the context of the chat.
 

Rebecca {public msg} Hello and Welcome to our talkAutism Specialty Chat. If you have a question for our Host Guest Speaker, Nancy Cale (Nancale), VP Unlocking Autism. Just type a "?" in the room. The names will be taken in order received. When you are cued, Please hold your questions until ready to post. Thanks!
Nancale {public msg} I see we have several Unlocking autism State Representatives in the room
Ron {public msg} all right, UA reps!
Nancale {public msg} ready
Rebecca {public msg} Please feel free to begin with a brief promo and intro
Nancale {public msg} UA began almost 4 years ago with the simple goal of collecting picture of children with autism
Tue Nov 26 21:04:45 2002 Nancale {public msg} to show the nation the face of autism. We have displayed the picture boards for 3 years in Washington, DC and at many conferences and seminars
Ron {public msg} ?
Nancale {public msg} people are amazed when they see the beautiful faces.....they are shocked because "our children" look just like theirs and I think people are realizing that if it can happen to our children it can happen to theirs. We have just started a new drive for pictures
Nancale {public msg} our boards have traveled many miles and are aged and worn
Nancale {public msg} so we are ready to have new ones produced and we want all of you to send in new pictures
Nancale {public msg} Hi Lynn
Nancale {public msg} another Rep!
Dylansmom27 {public msg} hi Room , Hi Nancy
Nancale {public msg} The new boards will be flexible and we will be able to roll them up and ship them across the country
Ron {public msg} ?
Nancale {public msg} You can get a release form on our website
Nancale {public msg} www.unlockingautism.org
Excellentbeautiful2002 {public msg} ?
Nancale {public msg} We would ask that you print the form and distribute it to your local groups and schools
Nancale {public msg} If you have ever seen the boards you know what an impression they make on the viewer
Mommyo {public msg} What other things does your group do?
Ron {public msg} Is the picture collection project the most important project for UA at this time?  Are there others you're looking for advocacy as well?
Nancale {public msg} We held a Power of One conference in Dc 2 years ago to train parents in advocating for their children
Nancale {public msg} We have put together the Rally in DC for two years
Dylansmom27 {public msg} ?
Nancale {public msg} we have a net work of Representatives all over the USA and in other countries
Ron {public msg} great stuff , thanks
Ron {public msg} how does the rep network work?
Nancale {public msg} who are ready to help parents
Nancale {public msg} there is a map on our website. Just click your state and you will get the e mail addresses and phone # of Reps in your state
Mommyo {public msg} what kind of help do your reps give
Nancale {public msg} they can tell a parent what might be available in the area of schools, doctors, therapist, assistance
Nancale {public msg} it is a very one on one personal type of network
Mommyo {public msg} are your reps other parents
Nancale {public msg} most are parents, some are therapist, grandparents like myself
Nancale {public msg} the reps also help us with projects throughout the year
Nancale {public msg} as well as fundraising
Mommyo {public msg} Do they have to be specially trained
Nancale {public msg} we have an exciting new project that will debut next week
Nancale {public msg} we aide the reps with the latest information available and they secure the local info
Mommyo {public msg} that sounds like a wonderful service
Nancale {public msg} we do have training seminars when the funds allow
Nancale {public msg} Mommyo  visit the website and let me know what you think
Moderator {public msg}  excellent beautiful has a question
Mommyo {public msg} what kind of fundraising do you do
Excellentbeautiful2002 {public msg} How can we get those pictures to come to our area?
Nancale {public msg} we have a wide variety
Nancale {public msg} reps can also chose a fundraisers that they want to do
Nancale {public msg} If you would like to be added to the UA mailing list just send me you e mail address
Excellentbeautiful2002 {public msg} And how much does it cost to participate?
Nancale {public msg} there is no cost
Moderator {public msg}  dylansmom has a question
Nancale {public msg} we do ask for a $5 donation with the picture to help us pay for the new boards
Dylansmom27 {public msg} Is there not going to be a DC rally in 2003 or are we only doing state by state rallies?
Nancale {public msg} we are not planning a DC Rally this year, but instead are asking our Reps to have local Rallies that are more accessible to parents
Nancale {public msg} Doing a DC Rally it terribly expensive
Dylansmom27 {public msg} yes I remember
Nancale {public msg} and as you all know it is hard for a parent of a special needs child to travel
Ron {public msg} I've been there for two of them.  UA does a great job organizing this, it's very labor intensive as well
Dylansmom27 {public msg} but it was also a wonderful bonding experience for us parents, and families
Dylansmom27 {public msg} I met some great people
Dylansmom27 {public msg} including you!!!
Nancale {public msg} Thanks Ron.. They take a big part of the year to get together and lots of $$
Nancale {public msg} Thanks Lynn.. I sure enjoyed our time together!
Dylansmom27 {public msg} me too
Nancale {public msg} It is a real joy for us to met our reps face to face
Moderator {action} . o O ( what role do your wonderful reps play? )
Ellennjuarep {public msg} I went to the rally 2 yrs ago BEFORE I was a UA Rep
Ellennjuarep {public msg} I couldn't go this yr because of family health problems
Ellennjuarep {public msg} The reps here in NJ are currently in the beginning stages of planning a Rally at our State Capitol
Nancale {public msg} We are hearing that there are many states already planning Rallies and Conferences for 2003
Moderator {public msg} that's wonderful
Nancale {public msg} We had a great Conference here in Atlanta area last March and one this Oct and there is another planned for march 2003
Mommyo {public msg} ?
Nancale {public msg} and even if you are not near your state capital you can do a Rally in your area
Nancale {public msg} Atlanta is always nice!! lol
Moderator {public msg}  Mommyo has a question
Mommyo {public msg} Do you have reps in every state? and how do the families in need find out about your service?
Nancale {public msg} a Rally doesn't have to big huge it just has to serve the needs of those in your area
Nancale {public msg} we have a few states not covered...
Nancale {public msg} the parents can go to our website and click on Parent@Parent. this will throw up the map.. If you are not happy with the help you get, try another rep  or e mail me
Mommyo {public msg} But if they never heard of your org. how can they find out there is a service
Mommyo {public msg} Do you advertise
Nancale {public msg} we want parents to know that they have power and that one at a time we can make a difference for our children
Mommyo {public msg} and do you go to allot of conferences
Nancale {public msg} we go to a lot of conferences
Nancale {public msg} we have a great website
Nancale {public msg} we also have products that we sell
Mommyo {public msg} I am just asking, because there are so many people in need, and not enough help out there
Mommyo {public msg} So many people can't find resources
Nancale {public msg} great tees, caps, golf balls, jackets, pins
Dylansmom27 {public msg} ?
Nancale {public msg} we have a wonderful cookbook ready for printing. just waiting to raise the funds to print it
Nancale {public msg} hundreds of parents contributed their recipes
Ron {public msg} Mommyo, remember expertfind, talkautism's online resource directory that everybody can add to (sorry nancy)
Nancale {public msg} Mommyo what state are you in
Mommyo {public msg} NJ
Mommyo {public msg} I feel very lucky here
Ellennjuarep {public msg} Mommyo.....
Nancale {public msg} well, NJ sure has a large and active autism community
Ellennjuarep {public msg} Feel free to email me if you'd like to...I am a rep for UA in NJ
Mommyo {public msg} Thanks
Moderator {public msg}  dylansmom has a question
Ellennjuarep {public msg} my email address is Ellennjuarep@comcast.net
Nancale {public msg} We have a Michigan UA rep and also a Mass. Rep here tonight
Ron {public msg} welcome Mich., and Mass
Rebecca {public msg} Nice to have you all ;o)
Ron {public msg} ?
Moderator {public msg}  Ron ask away
Nancale {public msg} I live in GA but frequent Maine where my grandson with autism lives
Dylansmom27 {public msg} Nancy, I feel that I don't do enough to spread the word on the local level, how can I do that? We don't have a whole lot of conference in my area. Should I print flyers and put them in doctors offices?
Ron {public msg} how similar are the state rep's issues from one state to another?
Ron {public msg} or resources to tap into?
Nancale {public msg} I am afraid that they can be totally different.. especially the services
Ron {public msg} it seems that way, do the reps network with each other in some way?
Nancale {public msg} Lynn  Printing the flyer is a good idea
Nancale {public msg} Lynn remind me and I will send you some info to use
Nancale {public msg} we have a Rep listserv and a rep website
Nancale {public msg} reps that live close work together but it is also a job that you can do alone if that is the way you work best
Dylansmom27 {public msg} ?
Nancale {public msg} Lynn Printing and passing out literature is good
Nancale {public msg} you more info to use for that
Nancale {public msg} we also want parents to know that there is no 'ONE WAY'  That each child and each family is different
Nancale {public msg} UA appreciates each individual situation and each parents choices
Mommyo {public msg} I agree with UA on individual free choice without judgment
Nancale {public msg} we also encourage our reps to work with other autism groups and organizations
Geoff {public msg} Just wanted to wish my favorite Grandma a Happy Thanksgiving
Nancale {public msg} Thanks Buddy
Nancale {public msg} no one lives with your child but you.. we are here to encourage and enlighten and support
Ron {public msg} is there something with the current federal legislation (and vaccines) that UA is taking a part in?  And how does UA take part?
Nancale {public msg} if we cannot help you we will direct you to a group that can..or at least try
Nancale {public msg} we take part by encouraging parents to speak up
Ron {public msg} do other groups ask UA to advocate for their causes?
Nancale {public msg} which means call , write and fax your governmental representatives
Geoff {public msg} especially Trent Lott after January first
Nancale {public msg} let them know that you are a voter and that you have concerns for the decisions that they are making as your representatives
Nancale {public msg} other groups do ask us to help and when we can we do
Geoff {public msg} Lott has stated that the amendments would be removed next year
Geoff {public msg} we need to hold him to his word
Geoff {public msg} or burn him
Nancale {public msg} they are my family, not by blood but by the love of children
Nancale {public msg} have you all seen the article today in Reuters
Ron {public msg} How are the reps chosen?
Geoff {public msg} good question
Nancale {public msg} I will mass mail it later tonight
Ron {public msg} what's it about?
Nancale {public msg} we have an application process and a commitment
Geoff {public msg} How did I become a rep
Geoff {public msg} smiley face doesn't work
Ellennjuarep {public msg} is that the article about sealing the vaccine records Nancy?
Nancale {public msg} Reuters is about Bush wanting to lock away info   on the vaccine injury suit
MI-ua-rep {public msg} I saw the story and it makes me sick
Ellennjuarep {public msg} yep, that's it...I saw it
Ron {public msg} oh yeah!
MI-ua-rep {public msg} Attorneys for the Bush administration asked a federal court on Monday to order that documents on hundreds of cases of autism allegedly caused by childhood vaccines be kept from the public.
Nancale {public msg} Geoff you scared me into it!!! lol
Ron {public msg} Geoff scaring anybody, impossible
Geoff {public msg} it must have been the check
Nancale {public msg} well I hope we get a new picture of each of your children in the spectrum ASAP
Geoff {public msg} I have been in contact with Mary Matlin at the White House and will reach out to her in the AM about this
Ron {public msg} yes,  we'll all spread the word
Nancale {public msg} thanks
Geoff {public msg} What else do I have to do.
Moderator {public msg}  Thank you Nancale for a very interesting chat tonight.  We appreciate you spending the time with us to spread the word..SEND those pictures in!
Ron {public msg} Nancy -- thanks for all the hard work, showing what grand moms can do, and connecting all the UA reps.
Rebecca {public msg} Thank you Nancy!
Nancale {public msg} great Geoff.. also we are asking every one to fax the Whitehouse and ask the president to hold a conference on Autism
Ron {public msg} Thanks Moderator and Rebecca.  www.unlockingautism.org  for lot more info.  Let's keep working together
Geoff {public msg} Keep up the great work Nancy...Love YA
Nancale {public msg} let's all work together and get this job done@@
autism {public msg} Adrian from NJ wants to wish all you wonderful people a great Holiday. You all will be on my list of blessings I have to be thankful for.
Rebecca {public msg} Please watch the talkAutism Guest Speaker schedule for further listings. Also, this room is always open for gatherings.
Nancale {public msg} Thanks to you all
autism {public msg} Thanks you Nancy for all that you do for all of us!!!
Nancale {public msg} I thank you all !!

talkAutism.org

Please feel free to join in the discussions on the talkAutism Discussion Boards at any time!
http://www.parenthoodplace.com/cgi-bin/ultimatebb.cgi

For past talkAutism Specialty Chat transcripts: http://parenthoodchat.com/transcripts.html

 

Book of the Month
November 2002

It's Our World, Too! by Phillip Hoose Recommended for anyone with a social conscience

It's Our World, Too! by Phillip Hoose for full details click here!



icon


Logo 125x125




120x600 Bubble Products

icon



Home | Live Chat | Discussion Boards | Books | Shopping | Pregnancy | Disclaimer | About Us | Recipes | Chat Transcripts

Owned and operated by parents for parents & parents-to-be Comments@ParenthoodPlace.com

Copyright 2001-2002. ParenthoodPlace.com Please read disclaimer.